Leave a Comment Cancel Reply . https://www.restartmed.com/product/t3-conversion-booster/ . That may not be the best decision, but I was becoming very depressed. Consuming excess iodine: If you're at risk for hyperthyroidism and consume too much iodine (through your diet or medications), it can cause your thyroid to produce more thyroid hormone. To further avoid exposing others to radiation:. Affected cats produce too much thyroid hormone. Read our, An Overview of Thyroid Disease Treatments, The Low-Iodine Diet for Radioactive Iodine Treatment, Society of Nuclear Medicine Procedure Guidelines (PDF), Practice Recommendations of the American Thyroid Association (PDF). The interesting part was the B12 level was normal at 737 but methylmalonic acid slightly high(319) and homocysteine at 13.9. The trip will be about 45 minutes each way. The radioactive iodine uptake test (RAIU) is also known as a thyroid uptake. not the treatment of choice for them. Not to mention the radiation! To decrease the spread of radioactivity: If possible, use a separate bathroom. And was doing well on a vegan/plant based diet. It targets VEGFR, BRAF, and RET tyrosine kinase and inhibits the proliferation and angiogenesis of cancer cells. With that in mind, lets jump into what you should expect after your procedure. I am in a gym 3 days a week I do water therapy/aerobics 3 days a week and I still cant lose weight I try to eat a low calorie Healthy diet Mostly either paleo or keto and no matter what I do I still cant lose the belly fat. 12 noon, lunch and VS with glucose readings. Contact: NCI Press Office. The good news is that this particular side effect doesnt last very long (compared to some of the other issues we will be discussing next). More important than how the procedure works is how it will affect you afterward. The iodine is taken into the thyroid gland and incorporated into thyroxine. and seriously lethargic?! I know this post is older but I am considering radiation! Eat breakfast. The permanency can be seen as a benefit as patients condition will become stable and symptoms can be more easily controlled. I also used Nioxin shampoo. Receiving intravenous iodinated contrast (iodine "dye") may also cause hyperthyroidism. Most thyroid patients who receive RAI treatment eventually end up hypothyroid and will need to take thyroid hormone replacement drugs indefinitely. I have Graves disease and recently have a hyperthyroid flare up after being in remission, I went back on my meds but was recently taken off to see if I can do radiation. One doctor wants a monitor of pulse five times daily, hes concerned about para thyroid damage. Not only can doctors NOT find a thyroid replacement that works for me due to side affects, Ive lost 70% of my hair and have to wear wig, Ive gained more weight than ever before in my life, Im constantly fatigued, in pain, moody, still have a very fast heart rate between 110-130, anxiety (like Im still hyperthyroid, but Im not.) A second set of scans will be taken after the contrast dye has been given. I think that she was supposed to maint. If this occurs, it is usually goes away as the body heals. I must admit I feel like a lab rat at times with all the tests and trials. Along with a pain and numbness in my right hand. Well since this journey has began Ive lost almost all of my hair and gained a ton of weight. So, fast forward to February of this year, all blood tests were negative for signs of cancer, so no fine needle biopsy was done, and at that point it was just a simple goiter, and was supposed to simply have a partial right side lobectomy, and after a couple weeks return to work and life goes on. Since then, each year various GPs have looked at my thyroid function test results, focused solely on the low TSH reading and have now reduced my levothyroxine down to 100 despite my arguments to the contrary. If possible, its always ideal to try and normalize your weight BEFORE the procedure. My endocrinologist said RAI didnt work I need surgery or second RAI treatment my other hormone results was :FSH 5.3(1.5-12.4)LH:8.8(1.7-8.6) But what if you only destroy 30 to 40% of your gland function? The other 20% may require additional testing and the use of other thyroid medications which contain T3 thyroid hormone. Wash your clothes and dishes separately from your family's so you don't contaminate their belongings. If we extrapolate out this data then it means that on average 30% of all people who undergo RAI can expect to gain some kind of weight. If your head and scalp are exposed to radiation (usually after a brain tumor surgery), it can affect the hair follicles and cause hair loss while the rest of the body may be unaffected. (Pat). 1. Get my free thyroid downloads, resources, and PDFs here. A better option might be to try just a partial thyroidectomy or to take out just the half of the thyroid with the cancer. So far I feel strong and as I did before. I was recently on Naturethroid for some years and it seemed to be a better choice for me, it was quite the battle to get the Drs to prescribe it. I have Hypothyroid Mom readers struggling with hypothyroidism now since treatment for their Graves' with radioactive iodine (RAI) or thyroidectomy. These effects include a warm, flushing sensation, a salty or metallic taste in the mouth, a brief headache, or nausea. I am a female, and Im 60 years old, soon to be 61. I feel good, but still struggling with tiredness and some weight gain (some weight gain due to post menopause). Im 60 years old, so its not like Ive got a full life ahead of me, not a big deal. I would recommend that you read this article for more info: https://www.restartmed.com/normal-thyroid-levels/. The radiation will pass out of your body through your urine within days. I was wondering can I color my hair at a salon. Thinning hair. I welcome Barbara Lougheed, author of the book Tired Thyroid: From Hyper to Hypo to Healing - Breaking the TSH Rule. I ordered the dutch test so have those results but I cannot read it and I am not sure what it all means. No, you won't lose your hair after a radioactive iodine treatment. At that time my numbers were so low I was experiencing eye problems. This isnt always true, but it is true for MOST people. Radioactive iodine is absorbed and concentrated by the thyroid gland. A small portion of radioactivity will be found in your saliva and sweat. Many clinical studies have also confirmed that weight gain after RAI is a real risk. Check out my thyroid supplements. 5PM supper with VS and glucose readings. I have my thyroid ablated about 20 so years ago. You are very welcome, I hope you find the information helpful! Your Doctor will be able to help determine how much of your gland was destroyed. For most people, this means that you can expect to live at 80-90% of your 'normal'. It really depends on whether or not your entire thyroid gland was destroyed. It is worth pointing out, however, that some other tissues can take up the radioactive iodine such as the beta cells in your pancreas (2) though it isnt clear how much damage exists (if any) in these other cells. I have been diagnosed with Mitral Valve Prolapse, asthma, arthritis, allergies, MCS, auto-immune thyroid disease, etc. The answer is maybe, and it depends on the person, how much damage was done to their thyroid, and other factors that arent always in your control. I was normal weight and now frustrated to be 30 pounds overweight. Now the top of my hair is thick and fine and the back of my hair is thick and curly it has a little bit of wire feeling to it. June 10, 2022 . The good news is that not every single person who gets RAI will necessarily gain weight. Radioactive iodine is a type of iodine that is radioactive - iodine 131 (I-131). For most people, this means that you can expect to live at 80-90% of your normal. Both hyperthyroidism and hypothyroidism cause intolerance to heat and cold respectively, so that isnt uncommon but what is uncommon is to experience those symptoms after RAI. So for the last 6 mos Ive had to take Levothroxine. Total testosterone was :10.47(7.60-32) low Prior to radioactive iodine treatment, doctors create a hypothyroid state in your body. Any help will be appreciated. Iodine (chemical symbol I) is a chemical element. Your hair should be colored before a BK treatment. Because the radioactive iodine used (known as iodine 131) may expose those around you to the effects of radiation (and theoretically negatively affect their thyroid glands), you will be given guidelines on how to prevent such exposure. The amount of iodine taken up by your thyroid is then measured. I would actually think about taking chances with the cancer instead of gaining weight. OR IT WILL BE GIVE ME PROBLEM? The next person to tell me how easy this cancer is, Im going to pull their toenails out threw their nostrils then tie them in a knot out their but hole. But you probably at least know a little bit about RAI or you wouldnt be here. I love to write and share what I've learned over the years. My endo physician would not increase the dosage so I went to my G.P. Five years later I was diagnosed with a severe case of Graves and the doctor said RAI was the best course of action and convinced me of that. The risk of developing a secondary malignancy due to radioactive iodine therapy . I feel more like a ping pong ball being bounced back and forth! Please see these articles which explain why weight loss is so difficult after thyroid removal or RAI: https://www.restartmed.com/levothyroxine-thyroidectomy-patients/ Youll still need to get those but the supplements can be used in addition to them. Within the first 2 years I gained 15 pounds with no diet/lifestyle change. My biggest fear is loosing my hair, my identity as a woman. I know some people contribute this Papillary and follicular thyroid cancers develop from follicular cells, which absorb iodine. Your TSH should always drop as you increase your thyroid dose and you should aim to get that TSH around the 1.0 range (which is considered normal in healthy adults). The best course of action is to contact the doctor that was responsible for your procedure and let them know about your symptoms. So I stopped going. Pls.can u explain about this. Memory loss. Should you expect to live a normal life afterward? Doctors tell cancer patients that the thyroid is the only tissue which takes up iodine, thus making this a safe form of cancer treatment that will not . If you destroy the entire gland then you will definitely need to be on thyroid medication. Can you tell me about when I will start medication, or should I be tested first? And, if you destroy your thyroid gland, it turns out that that may have consequences on your metabolism. This shouldnt stop you from trying natural therapies (as long as they are relatively inexpensive and not harmful) but you should have reasonable expectations as you do so. But my surgeon palpated three nodules and pathology report confirmed PTC, so a completion surgery was scheduled and performed this past April, and that lobe also showed cancer nodules on pathology report as well as some tissue purposely left because some cancer nodules had invaded my vocal chords. The last person put me on methazolo and I read the awful side affects. My hair has always been my pretty part of me, the one thing that makes me feel like a pretty girl. So I had the ablation without much research on my own, and now Im at the highest weight of my life and miserable. You may also experience nausea and vomiting, as well as a decrease in appetite. Prior to discovering the bump, I had reversed my Diabetes and had consistent HA1C readings of 5 or lower. A swollen or tender neck and feeling flushed. Prior to my RAI my level was .03. Hair that is not being treated directly with radiation can be dyed. I'm Dr. Westin Childs. Here are some ways to minimize radiation risks to other people (and pets) after you have had RAI treatment: Your healthcare provider will give you specific guidelines regarding how long various restrictions should remain in place in order to protect those around you. I eat all organic. Iodine is also sometimes prescribed as a topical treatment for certain conditions that cause hair loss on the scalp. This usually means that you are being overtreated and are being put into a state of hypothyroidism. My eyes improved for a while but now seem to be getting worse. biotin or a hair and nail vitamin might be good. There isnt a specialist in the area of hormone balancing but you can use the resource above to help you find someone who can help you. You can find my recommendations on how to manage hair growth/hair loss with thyroid disease in this detailed guide: https://www.restartmed.com/thyroid-hair-loss/. You wouldnt want to use a steroid on it unless you know what it is. P.S. You can get by this side effect by simply banking some of your sperm prior to your procedure and then using that sperm at a later date with procedures such as intrauterine insemination. This is my own journey with battling cancer and by any means not meant to scare or offend anyone, but to get my story out. Im planning on RAI in the next 2 weeks. Learn which foods you should avoid if you have thyroid disease of any type. What is your life going to be like after radioactive iodine treatment? I had RAI treatment 4 weeks ago 29.9 mci due to hyperthyroid hot noduals. I had RAI treatment done 10 years ago. If you havent already then you would probably want to make sure it isnt your other hormones causing these issues. can i color my hair after radioactive iodine. If it was, then you will most likely need to start thyroid medication relatively soon (within the next days to weeks). ", Verywell Health uses only high-quality sources, including peer-reviewed studies, to support the facts within our articles. These are just a few of the questions that I want to answer in this article. As it turned out, my fears, or premonitions were right. Hello Dr .Child But over the past month I see my weight dropping a half to a pound daily. So, I need to have an exercise program, vitamin and minerals that may help, food intake regulated to progress to increasing bone mass and weight loss. My question is even though my thyroid is dead, should the T3 and T4 level be tested as well? Verywell Health's content is for informational and educational purposes only. It doesnt appear that the first treatment was sufficient to destroy the hot nodules (or there is some other issue). The relationship between your thyroid to your hair growth aside, iodine . As a result, it isnt uncommon for some patients to suffer from persistent symptoms of hypothyroidism (meaning that they dont have enough thyroid hormone). To hide grays, try rhubarb root in two cups of water, simmer, strain, and pour over hair. The hardest time I had and have with my diet is getting hospital dietitian to understand that vegan/plant based does not mean fish and chicken are allowed. There is nowhere else to go tricare insurance is awful. My throat is killing me and outside of my neck is swollen. But Im not a pretty woman, rather plane, and frumpy. As I said earlier not everyone will necessarily need thyroid medication after they ablate their thyroid. I eat a diet free of inflammatory foods and exercise 3-5 times a week, but I cant get my weight to budge more than 5-10 pounds. I had RAI treatment for severe Graves disease in 1993. How can I speed up a metabolism if I dont have a thyroid anymore because of the RAI? my RAI, i have rough horsey voice also for a month . Since the science is inexact there are two ways of approaching the treatment. Certain 'hair supplements' should be avoided as they may contain iodine or interfere with levothyroxine . Is it healing and producing its own thyroxine now? Your body then takes up this radioactive iodine into your thyroid gland where the radiation proceeds to destroy thyroid gland tissue. Family Medicine 59 years experience. Several of my siblings make fun of me and say I am hiding but dont even know what Graves disease is and I was not around them and did not share my health issues until recently with them. 2023 Dotdash Media, Inc. All rights reserved, Mary Shomon is a writer and hormonal health and thyroid advocate. I had RAI treatment nearly 2 years ago, and deeply regret it. Iodine is found naturally in some foods and is also added to salt that is labeled as "iodized". As so many of you, I too was very unaware of the many causes of having your thyroid removed can have on a person, or the underlying affects that can be caused by the I-131 RAI "therapeutic" radioactive iodine treatment. I fall backwards with no explanation other than car exhaust in my air space, with some injuries as a result. Thank you for any advice! #3. I was experiencing heart palpations, diffuclty breathing while lying down, weight gain. Muscle pain or weakness. I read your list of vitamins all NINE of them, and the only thing I could think of is NO! Life has been very difficult as I basically go very few places now and live a life with little social contact. Hi! Fifteen years ago diagnosed with hyperthyroidism and had RAI. Most of the radioiodine in your body will come out through the urine and stool. Free T4. Here are some ways to minimize radiation risks to other people (and pets) after you have had RAI treatment: Stay at least six feet away from other people, including members of the public, family members, and co-workers, for three to 11 days. Some people also feel flushed. Now they are suggesting a second treatment at a higher dose. Your concerns should be taken seriously and evaluated. Hi doc! Doctors use nuclear medicine to diagnose, evaluate, and treat . Hi, doctor, I am in a lot of pain I stay cold 100 percent of the time with body aches sleepless nights. Then PCP wants B/P readings and daily weights. I was being treated for hypothyroidism and graves . The majority of radioactive iodine, therefore, will be absorbed by any remaining thyroid cells. Dont let this be of major concern to you, though, because in most cases these symptoms can be managed. Hopefully, you're now a lot closer to figuring out what color you should dye your hair. Over the next 5 years I gained another 10 lbs. My endocrinologist said he never heard someone like that after RAI, but i asked my cousin who is a family doctor back home that you will expect that will happened to you. Rinse your hair with warm water and shampoo it. Theres no way to tell if your eye symptoms are related to your thyroid without first trying to optimize your TSH (which should be your next step). So, if I go to bed earlier, I have to set my alarm clock to get up to take the damn pill, then have a hard time to get back to sleep, then just when I do fall into slumber, its time to get up and going for the day, and take a list of other meds, and monitor VS and glucose readings. Any idea Sir ? Any suggestions? Findings from a study of patients who received radioactive iodine (RAI) treatment for hyperthyroidism show an association between the dose of treatment . So, I ate what I could and left the rest. I have spoken to my doctor about it but he doesnt care. This content is strictly the opinion of Dr. Westin Childs and is for educational and information purposes only. Men should sit down when urinating. of iodine, and only one is not radioactive (Iodine-127). She enjoys giving lectures and writing articles for both the lay public and medical audiences. relative viscosity of nylon 6; predictive index cognitive assessment answers; why do baseball players spit so much Thank you! Once your thyroid is destroyed, it will no longer work exactly as it used to. Foods to Avoid if you Have Thyroid Problems: Ive found that these 10 foods cause the most problems for thyroid patients. Your doctor should monitor you for symptoms of hypothyroidism after RAI treatment. I can barely eat . When they injected RAI contrast dye through an IV for the test, I went in shock and they stopped the testing until later that day. There's no medical indication to support this as a benefit, and as we mentioned above, excess iodine could cause much bigger problems in the long run. Oh, my CTS now has to be taken care of too, and ortho doc has me on Vit B6 for the nerve damage, also the CTS has gone into my elbow, shoulder, neck and back now too. I cant find anything suggesting these are expected symptoms after RAI. They also found that nearly 1 third of all patients (31.2%) moved into the overweight or obese category from a lower weight category (based on BMI charts by the CDC). They all tell me Thyroid Cancer is the easy cancer. Then, also there is the womens health portion of all this, and so I had my annual, and a polyp was found on my cervix, it was a rather large one, and thankfully no cancer cells on that, my PAP Im waiting for results. FSH was :4.33(1.50-12.40) One of the more surprising aspects of getting RAI done is the fact that you are quite literally radioactive after your procedure. I had never been to endocrinology prior and had no idea about thyroid function. Homocysteine down to 11.5, methlymalonic acid down to 257. Center for Hormonal Health and Well-Being, Information for patients administered radioactive iodine (I-131), Fact sheet: guidelines for patients receiving radioiodine I-131 treatment. My Dr. stated that my MTHFH enzyme is blocked indicating a genitic issue. The combination you would want to try if you are post RAI is as follows: Thyroid Daily Essentials 1 packet each day https://www.restartmed.com/product/thyroid-daily-essentials-thyroid-multivitamin/ Swelling and tenderness of the salivary glands. Radioactive iodine may also affect a woman's ovaries, and some women may have irregular periods for up to a year after treatment. I dont see such good numbers. Approximately 90% of people who take radioactive iodine to treat hyperthyroidism need only one dose, although it may take up to 6 months for it to fully work. The radiation comes from a radioactive substance called iodine-131. Last week labs getting better with a methylpro supplement. I felt well on this level. And if the color is hash on the . Here is my story: A year ago I felt a bump on the right side of my neck, so on a routine follow up visit with my PCP for diabetes, I mentioned it to him. But, if I was being honest, I think that most people should not rely on the possibility of restoring much thyroid function after their procedure. Is there anything I can do to protect myself as I am driving her. Hi By Mary Shomon They are basically useless here, Ive been to two, and I am actually SCARED for the first time in my life. Just realize that you will always be in a sensitive category and you will be more likely to gain weight compared to people with their thyroid intact. Do not share any towels, razors, toothbrushes, cups, spoons, forks, or dishes. Its normal in the sense that ALL post RAI patients will become hypothyroid but abnormal in the sense that you should NOT feel poorly if you are treated properly. Before they killed my thyroid and before it was even diagnosed the heat affected me something terrible and would just take my breath away. I am now 54 years old. Free androgen index was :24.21(24-104) and endocrinologist said RAI didnt work I dont understand how thyroid levels goes up after RAI treatment 21.04.2017). In some radiation emergencies, usually nuclear power plant accidents, radioactive iodine may be released into the environment and enter the body through breathing or eating it. Some people may have a feeling of tightness or swelling in their neck for a few days after treatment. Warren Janowitz Radiologist Miami, FL. And Ive become Flat with my emotions now. 8PM HS snack and VS and glucose readings. You're given a drink or capsule that contains iodine and a low dose of radiation, which is . 5 years ago I had intense radiation treatment for breast cancer and was told to avoid X-Rays, Cat Scan, unless absolutely necessary. The good news is that this radioactivity does fade over a short period of time (usually 5 to 7 days) but the bad news is that you need to stay under certain precautions during this time. and I'm proud to say that over 80,000+ people have used them over the last 6 years. Another doctor wants my temp and glucose readings, temp shes ok with once or twice during the day. SPECT/CT scan can contribute to establishing a final diagnosis in patients being evaluated for atypical locations of radioactive iodine accumulation after ablative doses of radioactive iodine, distinguishing between metastases from DTC and false positive accumulations or artifacts. Call (800) 542-1123 or visit www.labtechinc.com to learn more about protecting your home against radioactive iodine. They said I have HYPERthyroidism but she said I have a HIGH metabolism which doesnt make sense?!

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